Palliative Care Resources
Pediatric Palliative Care is appropriate for any child with a medically complex or life-altering diagnosis. Adding palliative care to the medical team is especially appropriate if the patient has 3 or more specialists, if their illness involves 2 or more body systems, or if it is expected that the illness has long-term ramifications.
Palliative care also attends to the emotional needs of the patient’s family, providing tools to bolster resilience and prevent caregiver fatigue.
Though often used synonymously with hospice, palliative care is distinctive in that it can be provided immediately, at the time of diagnosis, and provides the support required to live well while facing the challenges inherent in their disease.
There are many education resources available for those wishing to furhter their understanding of paliative care.
Courageous Parent Network
Courageous Parents Network is a non-profit organization and educational platform that orients, empowers and accompanies families and providers caring for children with serious illness.
NHPCO provides its members with the essential tools they need to stay current with leading practices, understand policy changes, and improve their quality of care. With resources that address the challenges providers navigate on a daily basis, NHPCO offers a wealth of expert knowledge and step-by-step solutions to fill the gaps.