The great aim of education is not knowledge but action.

-Herbert Spencer


There is so much to learn when living with medical complexity, and often times the information is hard to find. We have gathered here a few select resources that you may find useful on your journey.

We invite you to browse our growing collection of informative articles, videos, and organizations.


Diagnosis Resources


Travelling With Medically Complex Kids

Download our complete PDF in English or Spanish, or find information on specific topics below!

More Great Information


Courageous Parent Network


Living with serious pediatric illness is one of the most stressful experiences a family can face. Each family member will need and discover new ways of coping and communicating for themselves, and ways to cope and communicate together. CPN offers the voices of parents and providers to help guide and support you as you navigate the complexities of caring and loving a child with a serious illness.

We hope this space will continue to grow with useful resources. If you have found support from a resource that you would like to see listed here, please contact us and we will take a look!