Hard Conversations

Hard Conversations

Some conversations are hard because the topic is challenging.  Some conversations are hard because words mean different things to different people.  Some conversations are hard because the message is impactful, and word choice is particularly crucial while clarity is...
Storing Medical Information

Storing Medical Information

It may prove difficult to understand or wrap our minds around what the term ‘medically complex child’  represents.  How many diagnoses do they have?  How many body systems are involved?  How many specialists does the patient see?  Studies show that children with...
Happy Bodies

Happy Bodies

How does illness impact happiness? Kids with life-altering diagnoses have bodies that do not function as we think or wish they would.  And yet, it’s the only body they will ever have.  Their body is what got them here and certainly what keeps them here with us each...